GSR - Global Sociological Review

PARENTS PERCEIVED BURDEN SOCIETAL BEHAVIOR AND QUALITY OF LIFE OF PATIENTS WITH HEMOPHILIA A CASESTUDY OF THE CHILDRENS HOSPITAL MULTAN

http://dx.doi.org/10.31703/gsr.2021(VI-I).06 10.31703/gsr.2021(VI-I).06
Authored by : Saima Afzal , Sidra Hussain , Hafsa Rehman

06 Pages : 41-47

References

Bertamino, M., Riccardi, F., Banov, L., Svahn, J., & Molinari, A. C. (2017). Hemophilia care in the pediatric age. Journal of clinical medicine, 6(5), 54.
Chu, W. M., Ho, H. E., Wang, J. D., Chan, W. C., Liou, Y. S., Ho, W. C., ... & Tsan, Y. T. (2018). Risk of major comorbidities among workers with hemophilia: A 14-year population-based study. Medicine, 97(6).
Cutter, S., Guelcher, C., Hunter, S., Rotellini, D., Dunn, S., & Cooper, D. L. (2019). Mild-severe hemophilia B impacts relationships of US adults and children with hemophilia B and their families: results from the B-HERO-S study. Patient related outcome measures, 10, 257.
Fischer, K., De Kleijn, P., Negrier, C., Mauser- Bunschoten, E. P., van der Valk, P. R., van Galen, K. P. M., ... & Schutgens, R. (2016). The association of haemophilic arthropathy with Health-Related Quality of Life: a post hoc analysis. Haemophilia, 22(6), 833-840.
Goffman, E. (1963). 1963Stigma: Notes on the management of spoiled identity. New York: Simon & Shuster.
Myrin Westesson, L., Sparud-Lundin, C., Baghaei, F., Khair, K., von Mackensen, S., AcuÃƒÂ±a Mora, M., & Wallengren, C. (2019). Burden on parents of children with haemophilia: The impact of socio- demographic and child's medical condition. Journal of clinical nursing, 28(21- 22), 4077-4086.
Myrin Westesson, L., Wallengren, C., Baghaei, F., & Sparud-Lundin, C. (2018). Reaching independence through forced learning: learning processes and illness management in parents of children affected by hemophilia. Qualitative health research, 28(14), 2142-2154.
Nogami, K., & Shima, M. (2019). New therapies using nonfactor products for patients with hemophilia and inhibitors. Blood, 133(5), 399- 406.
Pilapil, M., Coletti, D. J., Rabey, C., & DeLaet, D. (2017). Caring for the caregiver: supporting families of youth with special health care needs. Current Problems in Pediatric and Adolescent Health Care, 47(8), 190-199.
Schwartz, C. E., Powell, V. E., & Eldar-Lissai, A. (2017). Measuring hemophilia caregiver burden: validation of the Hemophilia Caregiver Impact measure. Quality of Life Research, 26(9), 2551-2562.
Schwartz, C. E., Stark, R. B., Michael, W., & Rapkin, B. D. (2020). Understanding haemophilia caregiver burden: does appraisal buffer the impact of haemophilia on caregivers over time? Psychology & Health, 1-15.
Von der Lippe, C., Frich, J. C., Harris, A., & SolbrÃƒÂ¦kke, K. N. (2017).
Zanon, E., & Pasca, S. (2019). Intracranial haemorrhage in children and adults with haemophilia A and B: a literature review of the last 20 years. Blood Transfusion, 17(5), 378.

References

Bertamino, M., Riccardi, F., Banov, L., Svahn, J., & Molinari, A. C. (2017). Hemophilia care in the pediatric age. Journal of clinical medicine, 6(5), 54.
Chu, W. M., Ho, H. E., Wang, J. D., Chan, W. C., Liou, Y. S., Ho, W. C., ... & Tsan, Y. T. (2018). Risk of major comorbidities among workers with hemophilia: A 14-year population-based study. Medicine, 97(6).
Cutter, S., Guelcher, C., Hunter, S., Rotellini, D., Dunn, S., & Cooper, D. L. (2019). Mild-severe hemophilia B impacts relationships of US adults and children with hemophilia B and their families: results from the B-HERO-S study. Patient related outcome measures, 10, 257.
Fischer, K., De Kleijn, P., Negrier, C., Mauser- Bunschoten, E. P., van der Valk, P. R., van Galen, K. P. M., ... & Schutgens, R. (2016). The association of haemophilic arthropathy with Health-Related Quality of Life: a post hoc analysis. Haemophilia, 22(6), 833-840.
Goffman, E. (1963). 1963Stigma: Notes on the management of spoiled identity. New York: Simon & Shuster.
Myrin Westesson, L., Sparud-Lundin, C., Baghaei, F., Khair, K., von Mackensen, S., AcuÃƒÂ±a Mora, M., & Wallengren, C. (2019). Burden on parents of children with haemophilia: The impact of socio- demographic and child's medical condition. Journal of clinical nursing, 28(21- 22), 4077-4086.
Myrin Westesson, L., Wallengren, C., Baghaei, F., & Sparud-Lundin, C. (2018). Reaching independence through forced learning: learning processes and illness management in parents of children affected by hemophilia. Qualitative health research, 28(14), 2142-2154.
Nogami, K., & Shima, M. (2019). New therapies using nonfactor products for patients with hemophilia and inhibitors. Blood, 133(5), 399- 406.
Pilapil, M., Coletti, D. J., Rabey, C., & DeLaet, D. (2017). Caring for the caregiver: supporting families of youth with special health care needs. Current Problems in Pediatric and Adolescent Health Care, 47(8), 190-199.
Schwartz, C. E., Powell, V. E., & Eldar-Lissai, A. (2017). Measuring hemophilia caregiver burden: validation of the Hemophilia Caregiver Impact measure. Quality of Life Research, 26(9), 2551-2562.
Schwartz, C. E., Stark, R. B., Michael, W., & Rapkin, B. D. (2020). Understanding haemophilia caregiver burden: does appraisal buffer the impact of haemophilia on caregivers over time? Psychology & Health, 1-15.
Von der Lippe, C., Frich, J. C., Harris, A., & SolbrÃƒÂ¦kke, K. N. (2017).
Zanon, E., & Pasca, S. (2019). Intracranial haemorrhage in children and adults with haemophilia A and B: a literature review of the last 20 years. Blood Transfusion, 17(5), 378.